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...everything you need to know about doing dialysis at home.
Travel brings you new vistas and broadens your world. When you choose home dialysis, you can travel without having treatments at a center you don’t know. Instead, you can do your own treatments. And, you don’t have to plan your work trip or vacation days around when a center has slots for you—you can choose your own schedule, too.
We’ll tell you your rights under U.S. law, help you see if your machine will fit on board or must be checked as luggage, tell you about dialysate, and share some travel tips. Bring this article with you to the airport so you can show the Federal law to the gate agent.
Travel tip: Call the airline and ask if they have a Disability or Special Assistance Coordinator. He or she can help you work through the airlines’ systems.
The Air Carrier Access Act (ACAA) of 1990 says airlines can’t discriminate against people with disabilities. The law applies to U.S. and foreign flights. The U.S. Dept. of Transportation (DOT) oversees air travel and has rules under the ACAA to help people with disabilities travel by air. These rules, called 14 CFR Part 382,1 cover your rights when you need an “Assistive Device”2—like a portable dialysis machine.
Your rights include:
Your rights when you check a dialysis machine as luggage are less well-known. Some agents will try to charge a fee if you have suitcases plus a machine. (NOTE: With fuel prices high, most airlines now charge a fee for checked bags.) Some will charge you if your machine weighs more than 50 lbs. Some do both. DOT spokesman Bill Mosley says, “We’ve told carriers that they shouldn’t charge for dialysis machines, which are assistive devices.” Under the ACAA (Section 382.57), the airlines are not allowed to charge you for your dialysis machine.3
Here is the section of the manual that tells the airlines that they can’t charge you:4
Question: Are airlines allowed to charge for providing services to passengers with disabilities?
Answer: Airlines are not allowed to charge passengers for providing services or accommodations required by part 382, but may charge for optional services or accommodations. Examples of required services for which carriers may not charge are assistance with enplaning, deplaning, and making flight connections, and the carriage of assistive devices (including the provision of hazardous materials packaging for wheelchair batteries, when appropriate). Examples of optional services for which carriers may charge are the provision of in-flight medical oxygen and stretcher service. [Sec.382.57]
Our table below lists the eight largest airlines, phone numbers, and carry-on bag limits. Use this information to measure your PD cycler—inside its case—to see if it will fit on the plane or must go as checked luggage. The NxStage System One is too large to fit in any airplane cabin and can only go as checked luggage. Plan to arrive at the airport 2 hours early; it takes time to talk to airline agents who don’t know about travel with a dialysis machine.
|Carry-On Size Limit
(must fit in an overhead bin or under seat)
800-433-7300 (say “more options”)
|42 linear inches (length x width x height) & 40 lbs.|
800-252-7522 (Press 3)
|51 linear inches (10” x 17” x 24”)|
800-525-0280 (Say “Other”)
|51 linear inches and 40 lbs.|
800-221-1212 (Say “representative”, then say “something else”)
|45 linear inches (22” x 14” x 9”) and 40 lbs.|
800-225-2525 (Say “new reservation”, press #, say “agent”)
|45 linear inches (22” x 14” x 9”) and 40 lbs.|
|50 linear inches (10” x 16” x 24”)|
800-864-8331 (Press 2, then say “Agent”)
|45 linear inches (22” x 14” x 9”) and 50 lbs.|
800-428-4322 (Press 4, then 4)
|52 linear inches and 40 lbs.|
|* special thanks to Carrie Lundy for updating this chart|
Bags go astray. It doesn’t happen often—and when it does, they most often arrive on the next flight—but it does happen. To be safe, always pack all medications in your carry-on—never in checked luggage.
Airplanes don’t have refrigerators, so if you have a drug that must be kept cold, ask your pharmacist how to package it for travel. If you bring syringes, you must also bring along the drug you inject, like insulin or EPO. And that drug must have a professionally printed label that says what it is. There is no limit to how many empty syringes you can bring—as long as you also have the drug with you.
If it has been a while since you last flew, you will find that some things have changed. You can only go to the gate if you have a ticket for a flight that day. Liquids in carry-on bags must be 3oz. or less each—and must all fit in a clear, 1-quart Ziploc bag. Security will throw out anything larger, or you can pack it in your checked luggage. The 3 oz. limit does not apply to medications, baby formula, or contact lens fluid. You can’t bring any kind of fuel (e.g., cigarette lighter), knives—of any length—or other weapons, toxic chemicals, or anything that could explode. Nail clippers, tweezers, knitting needles, and scissors with blades shorter than 4 inches are okay to bring in carry-on bags.
Bring a government-issued photo ID with you, and your boarding pass. You will put your carry-on bags onto a belt to go through an X-ray machine. Ask for help if you need it to lift your cycler onto the belt. Because most airport security guards have never seen a PD cycler, you may have an easier time if you bring the manual for your machine and/or a letter from your doctor to explain what it is.
Remove metal from your body before you pass through the metal detector. Gold or silver jewelry should not set off the detector. Coins, belt buckles, cell phones, and shoes may have metal that will set off the detector. Wear shoes that are easy to remove; you can ask for a chair to make this easier. If you set off the metal detector, the security guard will ask you to step aside for a more-careful search.
If you have an insulin pump, a pacemaker, a steel plate in your body, a prosthetic limb, or other hidden medical device, tell the security guard before you go through the metal detector. It’s a good idea to have a letter from your doctor to explain what the device is—especially if he or she suggests that using a metal detector or hand wand to detect metal would be harmful to you.
As an assistive device, a PD cycler has priority for stowage. Be sure to measure it first so you know it will fit in an overhead bin or under the seat.
If you plan to bring your cycler onto the plane, tell the gate agent, and ask for help to get your cycler on board and stowed if you need it. When boarding starts, the agent will ask for “passengers who need assistance or extra time getting down the jetway.” Board then to be sure to have room to stow your machine.
When you do PD or use a NxStage machine for home hemo, you’ll need to bring dialysate on your trip, too. Plan ahead so your supply company can ship most of the boxes to where you’re staying. The airlines should take a day or two of dialysate without a fee for extra or overweight luggage—but more than that will cost you money. For the airlines, all supplies must be in their original boxes, with the contents clearly labeled.
If you’ll be staying in a hotel, call ahead and talk to the Bell Captain or Hotel Manager. Explain that you will need to receive life-saving medical supplies for your stay. Ask if they can waive the fee for accepting or storing packages (or charge you one fee, rather than per-box). Many hotels can provide a bathroom scale. It won’t be as accurate as yours, but beats bringing one along.
If you do PD, you’ll need to warm the bags. An electric heating pad won’t take up much room in your suitcase. Lay a towel down above and below the heating pad and put the bag on top to warm it. Use the “low” setting.
Travel tip: When you travel with suitcases, the rule of thumb for tips is $1 per bag. When an item is heavy or you have many boxes, look for a Skycap with a large cart. He’ll watch for your items, take them off of the baggage claim belt, load them onto the cart, and even help you find a cab.
Plan to tip $5-10 for your machine (based on how heavy it is) plus $2 per box. You’ll also have to tip the cab driver and the hotel Bellman.
You don’t need to arrange for dialysis when you travel on PD or use NxStage, but it’s still a good idea to set up a back-up center in case you run into a snag. Talk with your home training nurse or social worker to find one. It’s also wise to do some homework about nearby hospitals and bring a copy of your medical records and medications.
Travel tip: Print this article and bring it to the airport. Most people have never seen a portable dialysis machine. If you need to, you can show the article to the counter agent when you check in—it can help your trip go more smoothly.
We hope your travel goes smoothly. But if you have a problem, you can report it to the DOT Disability Hotline at 800-778-4838 (voice) or 800-455-9880 (TTY).
Copyright © 2008 Medical Education Institute, Inc. All rights reserved.
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