Links & resources: Patient sites & stories

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  • Access-Able Travel Source - Provides information about disabled travel, wheelchair travel, disabled holidays, disability travel, handicapped travel, accessible travel, vacations for disabled, and mature travel.
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  • Daily Hemodialysis - Gus is a frequent poster in our message boards, and has his own site to share his experiences of daily home hemo at WellBound, using the NxStage machine.
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  • Dialysis from the sharp end of the needle - A blog by Bill Peckham tracking industry news and trends in advocacy, reimbursement, politics, and the provision of dialysis.
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  • Fix Dialysis - Organized by Bill Peckham, editor of Dialysis from the Sharp End of the Needle and a dialysis patient since 1990; and Gary Peterson, the editor of RenalWEB; Bill and Gary launched this effort and to launch a blog with a two-word mission: Fix Dialysis.
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  • HemoDoc, From Doctor to Patient - A doctor's blog from a patient's perspective exploring both sides of the doctor-patient relationship as a source of information and communication between these two distinct groups of people.
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  • I Hate Dialysis - They're not negative, they just hate dialysis. A place to rant, vent, or share experiences living with kidney disease. A site for patients, by patients.
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  • Nancy’s History of Hope - Nancy Spaeth went through a life-and-death committee to get dialysis in 1966—nocturnal home hemo! Learn about her fascinating story.
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