Advocacy for Better Dialysis
Patients Speak Out - Article One
In two journal articles published this month, patient advocates wrote about patient engagement in ESRD research—and why more dialysis is better.
Is Daily Home HD Safe from the MACs?
Wisconsin Physician Services, one of 7 Medicare Administrative Contractors (MAC’s) may add the language, “Some patients due to chronic or long-term conditions may require dialysis that exceeds the usually covered 14 treatments per month.” If this language becomes part of the final regulation, it would be a win for the 400+ advocates who contacted the MACs to protest the proposed elimination of extra treatments.
Home Dialysis is Mainstream! NKF Holds Meetings to Encourage It
A year ago and again in November, the NKF held Home Dialysis Conferences to discuss how to overcome barriers so more patients will dialyze at home.
RPA Says Action is Needed on MACs
The Renal Physicians Association is calling for legislative changes to the process Medicare contractors (MACs) use to decide what will and will not be covered—such as frequent home HD. The group wants the MACS to provide an evidence summary when they announce a draft local coverage determination, so stakeholders can react effectively.
Innovation Through KidneyX
ASN and AAKP advocates have been on the Hill asking for support for KidneyX, a public-private partnership that is a unique, patient-centered solution to reduce barriers hindering innovation in the prevention, diagnosis, and treatment of kidney diseases. The initiative will focus on development and commercialization of next-generation dialysis products.
Align the Incentives to Increase Home Therapies
The always-eloquent Tom Golper, MD, outlines a brief history of factors influencing the use of home therapies—with suggestions to help CMS and Congress realign incentives to increase use of options that are patient-centered and improve outcomes.
Dialysis PATIENTS Act: Nay
Non-profit dialysis company DCI and a Montana social worker discuss why they believe the act is NOT in patients’ best interests and would benefit only large dialysis companies.
Dialysis PATIENTS Act: Yea.
Fresenius supports legislation to modernize the healthcare system and provide dialysis patients the opportunity for value-based, integrated care, vs. fee for service.
New Act Could Expand Access to Telemedicine for Home Dialysis
CHRONIC Care Act would expand the originating sites for monthly clinical assessments to include freestanding dialysis facilities and patients’ homes, and lift geographic limits, starting in 2019. Home dialysis patients would still need a face-to-face visit with a nephrologist at least once every 3 months.
Beam Me Up, Dialyzors
Does telehealth work in dialysis? We don’t know yet, but an expert group met in Vienna, Austria to discuss the idea.