Be Prepared When You Fly with a Dialysis Machine

This blog post was made by Lana Schmidt on October 30th, 2014.
Be Prepared When You Fly with a Dialysis Machine

The law is clear that people traveling on an airplane with a portable dialysis device such as a PD cycler or NxStage hemodialysis machine should not encounter any difficulties. However, problems still happen, so be prepared. The intent of the DOT regulations, Guidance on the Transport of Portable Dialysis Machines by Travelers with Disabilities is to remind airlines of their obligations and inform people with disabilities of their rights regarding the use and transport of portable dialysis machines.

Heading to the AAKP meeting in Las Vegas, I booked a flight from Quincy, IL to St. Louis, MO for travel on Thursday, September 25, 2014 with Cape Air, a commuter airline with small planes. I contacted the corporate office in advance to explain that I would be taking my dialysis machine on the plane. The NxStage machine in its travel case weighs 100lbs, and Cape Air had taken it before. Their representative checked with someone and said, “ Yes it would be ok to take,” and we discussed the weight and size of the machine and how it would work. The representative contacted the Quincy Airport staff to let them know the machine would be on the flight. They stowed the machine in the back of the cabin and all went well with the flight from Quincy to St. Louis.

Unfortunately, before I headed home on Friday, September 26, 2014,I received a phone call from Cape Air customer service stating that they would not be taking my dialysis machine on my return flight because it did not meet their weight regulations of 70lbs!

I had to leave the meeting to take her call because I was very upset, shaking, and feeling as though my life was being threatened. After some heated discussion I said, “ You cannot leave a disabled women standing in the middle of the St. Louis Airport with a dialysis machine—a treatment I need every day to stay alive—with nowhere to go! ” She said she would get back to me.

Luckily, I had the Disability Hotline number with me . The hotline staff was also upset on my behalf, because an airline cannot change travel arrangements they had already agreed to while a passenger is en route. Within a short time, Cape Air called me and said they would “make an exception this time” and take my machine on their return flight because they rearranged some of their inventory, but “would not be able to do it again.”

When I arrived in St. Louis at the Cape Air ticket counter, the man complained that Cape Air should not be taking my machine and they had to vacate seats for it, etc… He would not take the machine as a checked bag at the ticket counter, as it had been done before. Instead, I had to go through TSA especially for the machine, a TSA manager had to be called, and it turned into a big deal that took 90 minutes. After I got home and shared my story, NxStage, suggested that I file a complaint with the Department of Transportation.

As it turned out, taking the machine on the flight did not even seem to affect Cape Air’s ability to carry a full plane of passengers:

  • The flight from Quincy, IL to St. Louis had 6 passengers plus a pilot: 7 people.
  • The flight from St. Louis to Quincy, IL had 7 passengers plus 2 pilots: 9 people.
  • They stowed my machine in the back of the plane on the floor—and it weighed less than a normal sized adult.

The Air Carrier Access Act (ACAA) of 1990 says that airlines can’t discriminate against people with disabilities on U.S. and foreign flights. The U.S. Dept. of Transportation (DOT) has rules under the ACAA to help people with disabilities travel by air especially those traveling with an assistive device such as a portable dialysis machine.

Some tips for flying with a portable dialysis machine from a Life@Home article on Home Dialysis Central:

  1. Ask the airline if they have a Disability or Special Assistance Coordinator when booking your flights, and make this person aware of the portable dialysis machine.
  2. Be prepared and take information with you about traveling with a portable device in case you run into trouble. Many airline staff do not know these regulations and have never seen a portable dialysis machine.
  3. Call the DOT Disability Hotline at 800-778-4838 (voice) or 800-455-9880 (TTY) if you have problems.
  4. Measure a PD cycler’s case to see if it will fit in an overhead bin or under the seat. If not, it will need to go as checked baggage.
  5. The NxStage System One is too large to fit in the airplane cabin and can only go as checked luggage.
  6. Box up and mail your additional medical supplies ahead of time or pack all supplies and medications in your carry-on. If you do this, it is wise to have a note from your doctor giving you permission to travel with needles, etc…
  7. Ask the hotel if they will waive the fee for accepting and storing boxes with medical supplies.
  8. Ask the hotel ahead of time for a bathroom scale. Many have them, so you don’t have to take one with you.
  9. If you don’t plan on handling the device yourself and will be relying on airline, taxi and hotel personnel to help with it, have cash on hand to tip them. Plan to tip $5-10 for your machine plus $2 per box.
  10. Hotel personnel can also help with lifting and setting up the machine.

Know your rights when you travel with a portable dialysis machine:

  • Airlines are not allowed to charge you for the portable dialysis device as additional baggage.
  • They are not allowed to ask you to sign a waiver for loss, damage or liability. If something happens to the machine they are responsible for replacing it.

References

“US Department of Transportation (DOT) document which was designed to implement the Air Carrier Access Act of 1986. This 16 page document (14 CFR Part 382) outlines “Nondiscrimination on the Basis of Disability in Air Travel”. http://airconsumer.dot.gov/rules/382short.pdf

“Guidance on the Transport of Portable Dialysis Machines by Travelers with Disabilities”. http://www.dot.gov/airconsumer/notice-portable-dialysis-machine

NxStage http://www.nxstage.com/homehemodialysis/products/travel

Comments

  • Brenda Rawson

    Aug 6, 1:21 PM

    I have been using the Baxter HomeChoice peritoneal dialyzer for past 6 months. I would love to plan some trips that involved flying.

    Will I be allowed to store this machine stored in a rolling case inside a plane? I,am not comfortable with being forced to put it in checked baggage. The reimbursement I have read of for damaged kidney dialysis machines is a fraction of what I would have to pay Baxter for repairs or another machine. Even more terrifying is that I must use this machine every night while sleeping. I will die from toxic fluid buildup w/o daily use of this machine.

    If it is damaged or lost I am in peril waiting on a resolution.

    I need an answer to this b4 I ever attempt to fly again.
    These machines can't be bought at WalMart or even medical supply stores. They must be ordered from Baxter & approved by Medicare!

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  • Lin thompson

    Nov 4, 10:07 PM

    Interesting article.

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