Advocacy for Better Dialysis
Kidney Health Initiative Involves Consumers
This public (FDA)/private (ASN) partnership obtains patient input throughout the lifecycle of approving new medical devices, including how patients can influence design, help to plan and implement clinical trials, and impact regulatory decisions.
In the Ides of March: National Kidney Month and World Kidney Day
Dr. Alok Agarwhal’s blog post focuses on the role of the US obesity pandemic in driving diabetes, high blood pressure—and chronic kidney disease.
How to Change “Adequate” Dialysis to Optimal
Adequate dialysis could change to optimal dialysis with one word: from payment per dialysis treatment to payment per treatment hour.
From the Patient Perspective.
Understanding the role of patients’ belief systems can guide medical professionals to help develop patient-centered, personalized treatment plans.
Let’s Hear it for the Patients!
When dialysis patients partner in research, their “experiential” knowledge is valuable and meaningful.
HDU critiques NIPRO needles in letter to FDA
Home Dialyzors United members know dialysis needles—they use them several times a week. The group challenged the “substantial equivalence” determination of NIPRO needles this month for a variety of reasons in a letter to the FDA. See the NIPRO response below.
What did Home Dialyzors United write to Marilyn Tavvener?
HDU believes that boosting the home dialysis training payment to clinics can help boost home therapies as well, and commented on the proposed rule for the Quality Incentive Program (QIP).
Aggressive target could boost US home dialysis
NN&I offers a concise analysis of the Medicare cost benefits to US dialysis clinics of offering home treatments—all of which have helped. A bit. Setting an actual target for home therapies might just boost the momentum.
Meet Home Dialyzors United's new board members
Harvard grad and high school science teacher Benjamin Ruback, who has used almost every kind of dialysis and home HD RV traveler Jim Smith are both articulate, passionate advocates of home therapies and exciting additions to the HDU Board of Directors.
Learn the secret to supporting people with kidney disease
Consumers supporting each other is the big news. Support groups can help people feel less alone and help them learn how and why to take care of themselves. Join our Home Dialysis Central Facebook group!