Advocacy for Better Dialysis

News Articles

Home Dialysis Is Growing, Says Dr. Thomas Golper

05/12/2020

At the Southwest Nephrology Conference in March, Dr. Golper said that the chances that patients will succeed on a home therapy will improve if nephrologists do their part to individualize options based on patients’ needs and goals. “Most of us think patients need to first learn about the therapy,” he noted. “I think that before they learn about the therapy, we have to learn about them.”

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Nephrologist Article Calls for Additional Incentives to Drive More PD

04/13/2020

Certain stakeholders were left out of the financial incentives to grow PD in the ESRD Treatment Choices (ETC) model, asserts two nephrologists. Surgeons who place PD catheters, hospitals, assisted PD, nurse training, standard education for stage 4 CKD, and Project ECHO to disseminate expertise from centers of excellence to smaller ones should all be incentivized as well.

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Kidney Care Partners Call on Congress to Protect Patients from COVID-19

04/13/2020

KCP is asking Congress and the Administration to protect vulnerable patients by ensuring that dialysis clinics have priority for equipment and supplies, paying for urgent start PD and staff-assisted home HD, and more.

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COVID-19 Telehealth Waivers Help Providers Care for Patients

04/13/2020

A CMS waiver is allowing a range of providers, such as doctors, nurse practitioners, clinical psychologists and licensed clinical social workers to offer telehealth to their patients—and providing flexibility to reduce or waive cost-sharing for telehealth visits paid by federal health care programs

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ADC Keynote Speaker Skeptical that Executive Order Goals Will be Met Via Policy

03/16/2020

Brent W. Miller, MD, does not believe that policy goals with carrots and sticks will get us to 80% of new ESRD patients to home dialysis or a kidney transplant by 2025. Speaking at the Annual Dialysis Conference, Miller noted that physician champions and increased numbers of home dialysis nurses will be vital—and that home dialysis retention is at least as challenging as recruitment.

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Tips on How to Advocate

02/19/2020

Learn 20 terrific advocacy tips to help patients make their voices heard in 2020 and fight for their rights from the Chronic Disease Coalition.

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California Dialysis Cost-savings Bill Temporarily Halted

01/09/2020

A recent court decision placed an injunction on implementing HB 290 into law due to potential risks to 3,700 patients. The law would prohibit dialysis providers from making a profit from insurance premiums paid by a third party—typically the American Kidney Fund—in an effort to lower costs to the state.

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Follow the Money…to PD

12/10/2019

An analysis of more than 600,000 U.S. dialyzers finds that use of less-costly and more patient-friendly PD is thus far the big winner after a 2011 CMS policy change favoring PD reimbursement. There were gains in patients starting on PD, switching to it from HD, and staying on PD.

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MEDPAC and Others Try to Apply Brakes to the AAKHI ETC Model

10/14/2019

“Serious methodological flaws” was the reaction of many of the 330 comments to the ESRD Treatment Choice model suggested to implement the Advancing American Kidney Health Initiative. The Medicare Payment Advisory Commission (MEDPAC) asked CMS Administrator Seema Verna to go back to the drawing board.

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AAKHI Executive Order Gives Hope to Home Dialysis Supporters

08/14/2019

Find out what Nieltje Gedney from Home Dialyzors United and John Bayton, a two-time kidney recipient think about the AAKHI.

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Comment on the AAKHI Until September 16th

08/14/2019

Now that the Advancing American Kidney Health Initiative has been published in the Federal Register, there is a window for comment until 11:59 p.m. (Eastern time), Monday, September 16. Visit this page to type in a comment or upload a Word document or PDF.

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Thank You, Sponsors! Home Dialysis Central Celebrates 15 Years of Advocacy

07/15/2019

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Proposed KCP Bill Would Empower Kidney Patients and Improve Access to Care

06/13/2019

Kidney Care Partners has not give up—the Chronic Disease Improvement in Research and Treatment Act of 2019 (S.1676) would help more people get predialysis education, study use of palliative care, expand access to care in underserved areas, improve care coordination between hospitals and clinics, create incentives for new technologies and drugs, improve patient decision making, and guarantee access to a Medigap policy for ESRD beneficiaries of any age.

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Thought Leader Tom Golper Calls for a National Home Dialysis Strategy

05/15/2019

At last week’s NKF Spring Clinical meeting in Boston, Dr. Golper noted that patient and clinician priorities for ESRD treatment do not match—and we must listen to the patient’s voice. Expansion of home-only clinics, and technologies for care and communication are vital as well.

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Patients Speak Out - Article Two

04/11/2019

In two journal articles published this month, patient advocates wrote about patient engagement in ESRD research—and why more dialysis is better.

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Patients Speak Out - Article One

04/11/2019

In two journal articles published this month, patient advocates wrote about patient engagement in ESRD research—and why more dialysis is better.

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Is Daily Home HD Safe from the MACs?

01/11/2019

Wisconsin Physician Services, one of 7 Medicare Administrative Contractors (MAC’s) may add the language, “Some patients due to chronic or long-term conditions may require dialysis that exceeds the usually covered 14 treatments per month.” If this language becomes part of the final regulation, it would be a win for the 400+ advocates who contacted the MACs to protest the proposed elimination of extra treatments.

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Home Dialysis is Mainstream! NKF Holds Meetings to Encourage It

12/14/2018

A year ago and again in November, the NKF held Home Dialysis Conferences to discuss how to overcome barriers so more patients will dialyze at home.

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RPA Says Action is Needed on MACs

07/13/2018

The Renal Physicians Association is calling for legislative changes to the process Medicare contractors (MACs) use to decide what will and will not be covered—such as frequent home HD. The group wants the MACS to provide an evidence summary when they announce a draft local coverage determination, so stakeholders can react effectively.

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Align the Incentives to Increase Home Therapies

04/12/2018

The always-eloquent Tom Golper, MD, outlines a brief history of factors influencing the use of home therapies—with suggestions to help CMS and Congress realign incentives to increase use of options that are patient-centered and improve outcomes.

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Innovation Through KidneyX

04/12/2018

ASN and AAKP advocates have been on the Hill asking for support for KidneyX, a public-private partnership that is a unique, patient-centered solution to reduce barriers hindering innovation in the prevention, diagnosis, and treatment of kidney diseases. The initiative will focus on development and commercialization of next-generation dialysis products.

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Dialysis PATIENTS Act: Nay

12/14/2017

Non-profit dialysis company DCI and a Montana social worker discuss why they believe the act is NOT in patients’ best interests and would benefit only large dialysis companies.

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Dialysis PATIENTS Act: Yea.

12/14/2017

Fresenius supports legislation to modernize the healthcare system and provide dialysis patients the opportunity for value-based, integrated care, vs. fee for service.

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New Act Could Expand Access to Telemedicine for Home Dialysis

10/13/2017

CHRONIC Care Act would expand the originating sites for monthly clinical assessments to include freestanding dialysis facilities and patients’ homes, and lift geographic limits, starting in 2019. Home dialysis patients would still need a face-to-face visit with a nephrologist at least once every 3 months.

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Beam Me Up, Dialyzors

08/17/2017

Does telehealth work in dialysis? We don’t know yet, but an expert group met in Vienna, Austria to discuss the idea.

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Kidney Health Initiative Involves Consumers

05/10/2017

This public (FDA)/private (ASN) partnership obtains patient input throughout the lifecycle of approving new medical devices, including how patients can influence design, help to plan and implement clinical trials, and impact regulatory decisions.

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In the Ides of March: National Kidney Month and World Kidney Day

03/09/2017

Dr. Alok Agarwhal’s blog post focuses on the role of the US obesity pandemic in driving diabetes, high blood pressure—and chronic kidney disease.

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How to Change “Adequate” Dialysis to Optimal

02/08/2017

Adequate dialysis could change to optimal dialysis with one word: from payment per dialysis treatment to payment per treatment hour.

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From the Patient Perspective.

01/09/2017

Understanding the role of patients’ belief systems can guide medical professionals to help develop patient-centered, personalized treatment plans.

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Let’s Hear it for the Patients!

06/08/2016

When dialysis patients partner in research, their “experiential” knowledge is valuable and meaningful.

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HDU critiques NIPRO needles in letter to FDA

05/09/2015

Home Dialyzors United members know dialysis needles—they use them several times a week. The group challenged the “substantial equivalence” determination of NIPRO needles this month for a variety of reasons in a letter to the FDA. See the NIPRO response below.

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What did Home Dialyzors United write to Marilyn Tavvener?

09/05/2014

HDU believes that boosting the home dialysis training payment to clinics can help boost home therapies as well, and commented on the proposed rule for the Quality Incentive Program (QIP).

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Meet Home Dialyzors United's new board members

03/07/2014

Harvard grad and high school science teacher Benjamin Ruback, who has used almost every kind of dialysis and home HD RV traveler Jim Smith are both articulate, passionate advocates of home therapies and exciting additions to the HDU Board of Directors.

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Aggressive target could boost US home dialysis

03/07/2014

NN&I offers a concise analysis of the Medicare cost benefits to US dialysis clinics of offering home treatments—all of which have helped. A bit. Setting an actual target for home therapies might just boost the momentum.

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Fresenius honors home hemodialysis advocate

02/06/2014

John Cannady will receive the Fresenius Medical Care Renal Therapies Group annual Pioneer in Excellence award February 9th. This award is presented to patients who have a positive impact on the dialysis community and advocate home hemodialysis.

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Learn the secret to supporting people with kidney disease

02/06/2014

Consumers supporting each other is the big news. Support groups can help people feel less alone and help them learn how and why to take care of themselves. Join our Home Dialysis Central Facebook group!

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The kidney community lost a great advocate last month

02/06/2014

Nephrology News & Issues Editor Mark Neumann writes his thoughts about the passing of Rich Berkowitz, Founder and President of Home Dialyzors United.

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Watch a new home dialysis slide show—and sign up for a meeting!

01/08/2014

NxStage has put together a new video slide show on short daily HD, and will be doing 50 meetings around the US to talk about home HD. Maybe one is near you. If you just want to sign up for a meeting, go here: http://ww2.nxstage.com/PT027_NxStageMeetings.html

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Were YOU Home for the holidays?

01/08/2014

Fresenius noted in December that the holidays—always a stressful time—could be calmer with home dialysis! The "Home for the Holidays" campaign notes that dialyzing in the comfort of your own home, getting to eat and drink more of what you love, and lower blood pressure are all benefits of home treatments. "We believe that every patient who wants to dialyze at home should be given that option," says Keith Lester, VP of Home Therapies.

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Working reduces depression, boosts financial security—and is supported by home dialysis

01/08/2014

DaVita had a press release picked up by the Wall Street Journal in December on this very important topic and their social media strategy for spreading the word! Find out the scoop about this win-win for people on dialysis and the clinics that take care of them.

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You won't believe how this UK clinic makes self-cannulation easier!

12/10/2013

Liverpool Hospital has a $20,000 portable ultrasound machine that home HD patients can check out and take home! With ultrasound, it's easier to see a fistula or graft and put in the needles. Imagine doing that in the US!

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Where can you find a 5-Diamond patient safety program on Buttonhole cannulation? (We'll tell you!)

11/06/2013

ESRD Networks 1 and 5 launched a 5-Diamond safety program for ESRD in 2008, which has been endorsed by the American Nephrology Nurses' Association, the Renal Physician's Association, and the National Renal Administrator's Association. A new module covers use of the Buttonhole (Constant Site Cannulation) technique, and you can find it here.

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What does NxStage believe is harming home HD in the US?

10/02/2013

In a recent press release picked up by the Wall Street Journal, NxStage announced that it sent comments to CMS to ask for an increase in the home HD training payment. At just $33.44 per session, the current amount does not come close to covering the costs of having a nurse teach a patient and family member.

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