A Video Guide to Hemodiafiltration at Home with the Fresenius 5008 Machine
Hi, I’m Helen, and at age 42 I was diagnosed with end stage renal disease due to IgA nephropathy. To say it came as a shock is an understatement. I was a single parent to a 9 year old and had only just moved house. I was admitted and commenced on urgent haemodialysis (HD) and preparations were made for me to commence APD/cycler (automated peritoneal dialysis).
After 18 months struggling with APD (I only felt well for the first 3 months), I was recommenced on HD to have preparations for an arteriovenous fistula (AVF). I was on maintenance (in centre) dialysis for 5 years, and during this time my health remained unstable due to hypertension. I was admitted to hospital five times in one year at one stage and on several antihypertensives.
Needless to say, the impact on my young daughter was immense. Following much research, I put myself forward to train for home HD, and have never regretted it. I’ve been on home HD since my daughter was 13 and am totally self-reliant: responsible for all my own needling, setting up/stripping down, ordering of supplies etc. We even managed to move house 6 months ago, and I organised having the equipment relocated etc. and avoided having to dialyze in centre. I am happy to say I’ve had no unplanned hospital admissions since being on home HD.
There should be no barrier for those wanting to commence home HD. If I can do it as a single parent and with four crazy cats, I’m sure with a little encouragement, more people will be able to.
I produced these three videos about doing hemodiafiltration (HDF), and hope they will provide info for those who are doing (or thinking of) this modality.
- Introduction and Lining of the Machine (22:13 minutes) https://www.youtube.com/watch?v=I7989ivaE2M
- Setting Up of Dialysis Table and Needle Insertion (37:18 minutes) https://www.youtube.com/watch?v=rut15aUUKPw
- Completion of Treatment, Disconnection, and Needle Removal (16:07 minutes) https://www.youtube.com/watch?v=Npcwb8j7DPc