Thriving Against the Odds: My Journey with Home Hemodialysis

My life has been shaped by a journey through end-stage renal disease (ESRD) since 2000. It all began after my third pregnancy when I was diagnosed with Membranoproliferative Glomerulonephritis Type II. The diagnosis was a turning point, marking the start of a challenging yet profoundly transformative path.

In 2005, I began my home dialysis journey. I chose PD as my modality and thrived on it for 9yrs. In 2014, I was blessed by two angels on earth through the paired exchange program at John Hopkins, I received a kidney from a live donor with the help of my loving, selfless husband donating his kidney. However, in 2021, my transplanted kidney began failing.

Unfortunately, my health was declining, and dialysis was inevitable. I was in denial at first but quickly realized how unwell I was feeling day by day. Eventually, I received education on HHD and even though I was terrified of the needles and having to cannulate myself, I found the courage to press on and empower myself to change my mindset.

One thing I've learned through this journey is that dialysis doesn't define my life; it's simply a part of it. With home hemodialysis, I have the flexibility to dialyze on my own schedule, allowing me to work, volunteer, travel, and socialize with friends—all while managing my health effectively.

Work has always been a cornerstone of my identity, and despite the challenges, I've continued to pursue my career with determination and passion. Whether I'm in the office or working remotely, my job gives me a sense of purpose and accomplishment that fuels my spirit.

Volunteering has also been a significant part of my life. Giving back to my community and helping others has been incredibly fulfilling. It's a reminder that despite my health challenges, I have the power to make a positive impact in the lives of those around me.

Travel has always been a passion of mine, and I've refused to let dialysis hold me back. Luckily with HHD, I can bring my machine with me to all my travel destinations. From exploring new cities to relaxing on beautiful beaches, every trip is a reminder that life is meant to be lived fully, regardless of the obstacles we face.

Socializing with friends and loved ones has been essential for my well-being. Whether it's gathering for dinner, celebrating milestones, or simply enjoying each other's company, their support and encouragement have been a constant source of strength throughout my journey.

Choosing home hemodialysis has significantly improved my quality of life. It has empowered me to live life on my terms. It's given me the flexibility and control I need to pursue my passions and responsibilities without compromise. Managing my health from the comfort of my own home has made a world of difference, allowing me to focus on what truly matters: living a fulfilling and meaningful life.

My journey with kidney disease has been challenging, but it has also been a journey of growth, resilience, and gratitude. It's taught me to appreciate every moment, to embrace life's uncertainties, and to never lose sight of the strength within myself. I hope my story serves as inspiration to others facing similar challenges—that with determination, support, and the right mindset, anything is possible.

As I continue this journey, I am grateful for every opportunity, experience, and person who has been a part of my story. I am proof that life with kidney disease can be rich and fulfilling, and I am determined to continue thriving, no matter what lies ahead.