Dialysis clinic staff are often called upon to help people make choices about how to pay for dialysis. Kidney disease is costly, but for US citizens and those in the US legally, there are multiple payment options. People with kidney disease must look for a plan that will cover hospital stays, doctors and other providers, in-center and/or home dialysis and transplant (including living donors), equipment and supplies, and drugs. They need to plan for changes as they move from decreased kidney function to kidney failure, and to or from dialysis or transplant. And, there may be different things to weigh with a health plan sponsored by an employer or union.
The table below addresses some common questions and compares Original Medicare, Medicare Advantage, and qualified health plans (QHPs) sold on a state or federal Marketplace or by an insurance company. QHPs meet requirements of the Affordable Care Act (ACA, or “Obamacare”).
NOTE: This table does not include short-term insurance plans or association plans that have lower premiums and can only be renewed once a year for up to 3 years. These plans can deny coverage for preexisting conditions and charge more for older people and women. They can exclude coverage for drugs, mental health, maternity, and substance abuse treatment and can set annual or lifetime benefit caps. Some have referred to these plans as “junk insurance.”
WHO is eligible?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Citizen or legally present for >5 years
Age 65 or older
Receiving SSDI for >2 years
Have ESRD requiring dialysis or transplant
Citizen or legally present in US >5 years
Live in plan’s area
If on dialysis, can enroll only in a Special Needs Plan (SNP) accepting ESRD (limited plans); 1/2021 will be able to enroll in any MA plan
If transplanted: not on dialysis can enroll in any MA plan
Citizen or legally present and not incarcerated
Can’t join if have Medicare Part A and/or Part B, full Medicaid or CHIP
Can keep after enrolling in Medicare, but lose tax credits and subsidies; individual plans don’t pay Medicare out-of-pocket costs
WHEN can a person with ESRD enroll?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Initial Enrollment Period (IEP): 7 mo period starting 3 mo. before eligible mo. through 3 mo. after eligible mo.
General Enrollment Period (GEP): If Part A was taken alone at first, can only apply for Part B 1/1-3/31 each year & Part B takes effect July 1st
Dialysis patients are NOT eligible for a Special Enrollment Period (SEP) to enroll late in Part B after taking Part A so must wait for the GEP.
Initial Coverage Enrollment Period: same as Original Medicare
Open Enrollment Period: Join or switch health/drug plans each year from 10/15-12/7 for a plan that starts on Jan. 1
MA Disenrollment Period: switch from an MA plan to Original Medicare & enroll in a Part D plan 1/1-2/14; before switching, have a plan for how to pay Original Medicare out-of-pocket costs.
Yearly 11/1-12/15
Special Enrollment: Limited time to enroll if household or residence changes, other health coverage is lost, and some less common events
WHAT happens if a person enrolls late?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
For failure to enroll in Part B after taking Part A during the IEP, the Part B premium penalty is 10% per year of delay
Can only enroll in Part B during the general enrollment period (1/1-3/31) with Part B starting in July; could have gap in coverage
MA plans include Part A & B automatically—but not all include Part D (if not, buy a Part D plan)
May keep ACA QHP plan but…
There is a premium penalty if delay enrolling in Medicare beyond IEP
WHEN will the plan take effect?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
There is a 3 month wait for Part A & B unless someone starts home training or gets a transplant during those 3 months. Then Medicare backdates to the 1st month of dialysis or pre-emptive transplant.
Medicare may backdate up to 2 months before a transplant to cover a patient’s admission for evaluation
Same as Original Medicare
Apply 11/1-12/15, & plan starts Jan. 1
With a special enrollment period, coverage starts the month after enrollment
Part B:Medical (outpatient, doctors, dialysis, some dialysis-related drugs & anti-rejection drugs)
No coverage for most dental, vision, hearing
Providers that accept Medicare assignment cannot balance bill those with Medicare for charges more than 100% of what Medicare allows
Structure: HMOs, PPOs, Private Fee for Service, Special Needs Plans, HMO Point of Service, Medical Savings Accounts
Includes Parts A & B, and may cover drugs on formulary, and other services not covered by Original Medicare like vision, dental, hearing, exercise
Care Network may be more limited than Original Medicare
Bronze
Silver (option for those needing subsidies to pay out-of-pocket costs)
Gold
Platinum
Catastrophic plan, for <30-years old & those who have a plan cancel, hardship or affordability exemption; lowest premium, highest deductible, may limit number of visits and providers
What is the PREMIUM in 2019?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Part A:Free with enough work credits based on age (ask Social Security)
Part A:Free If 65 or older with too few work credits, can buy Part A for $437/mo with <30 credits or $240/mo with 30-39 credits
Part B:$135.50/mo, or more if income is >$80K single/$160K couple
State may pay A&B premiums if someone qualifies for certain Medicare savings programs
Varies with plan. Plans with lower premiums may have higher out-of-pocket costs
Varies with plan. Plans with lower premiums may have higher out-of-pocket costs
What are other possible OUT-OF-POCKET COSTS in 2019?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Part A (hospital):
Days 1-60: $1,346 deductible, no copay
Days 61-90: copay $341 per day
NOTE: Get back days 1-90 if out of hospital 60 days
Days 91-150 (lifetime reserve days once used they’re gone): copay $682/day
Day 151 on:all costs
Part B (medical):
Deductible: $185/year
Coinsurance: 20% of allowed charge (with no maximum)
Out-of-pocked maximum up to $6,700/year for an individual for Part A and B covered benefits; a few plans have lower caps
Out-of-pocket maximum $7,900/year/ for an individual plan or $15,800/year for a family plan
Bronze: pays average of 60%;
Silver: pays average of 70%
Gold: pays average of 80%
Platinum: pays average of 90%
Catastrophic: pays average of <60% of cost of care for <30 years old or those with a hardship exemption
HOW can out-of-pocket costs be paid?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Medigap plans pay all or most out-of-pocket costs for Medicare-covered services; some states have no Medigap plans for those <65 or with ESRD
Full Medicaid, if qualify: pays Medicare out-of-pocket costs
Medically Needy Medicaid (not in all states): pays costs over “spenddown” (like a deductible)
Medicare Savings Programs, if qualify: QMB, SLMB, QWDI pay Part A and/or B premiums, QMB pays Medicare out-of-pocket costs too
Other health insurance plan: employer or union health plan, private plan off the marketplace pays as per policy
Medicaid if eligible
Cannot use Medigap
There are Special Needs Plans (SNPs) for those with both Medicare & Medicaid
Income of 100-400% of the federal poverty level may qualify for a premium tax credit
Income of 100-138% of the federal poverty level (some states allow higher income) may qualify for lower out-of-pocket costs (Silver plan)
No premium tax credits or cost saving subsidies if income is <100% of federal poverty
What are the options for DRUG coverage?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Medicare Bundle: Some ESRD-related drugs are covered under the rate paid for dialysis
Part B covers some drugs, including anti-rejection IF Part A was in effect the transplant month; Part B will never cover anti-rejection drugs if Part A was not in effect the transplant month; if not, Part D covers
Part D: Private companies sell these plans; have lists of covered drugs & costs vary from plan-to-plan and drug-to-drug
State Pharmacy Assistance Programs (where offered) can help
State kidney programs (if available) may help
Drugs are often covered in MA plans; anti-rejection covered under Part B or D depending on whether patient had Part A the transplant month; other drug copays vary
If MA plan has no drug coverage, may buy a Part D plan; covered drugs & costs vary
State Pharmacy Assistance Programs (where offered) may coordinate with MA drug plan differently from Original Medicare
Drugs are included in the basic benefit
Formulary & costs vary
A transplant recipient may want to review these plans if after 36 months post-transplant & Medicare ends & not eligible for another plan, not age 65 or older and not disabled for another reason.
WHEN is drug plan enrollment?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Initial Enrollment Period (IEP) is the same as the 7 mo. Part A and/or B IEP. IEP. If Medicare is backdated, IEP start is based on the Medicare award letter date.
If you have an employer group health plan, ask if enrolling in Part D will affect your employer plan’s health or drug coverage
Yearly: 10/15-12/7
Medicaid, those receiving “extra help” due to limited income or in nursing homes can switch once/quarter. The new plan starts the next month.
Initial EnrollmentPeriod Same as Original Medicare
Ask if enrolling in separate Part D plan will affect your employer plan’s health or drug coverage.
Special Enrollment Period: when a person switches from Original Medicare to MA, from MA to Original Medicare, or from one MA plan to another
No separate enrollment; drug coverage is included in individual QHPs and Small Business Health Options Program (SHOP) plans sold on the Marketplace)
Drug coverage may not be as good as Medicare Part D. Each year, the plan must tell members whether the drug plan pays as well as Part D
How do benefits COORDINATE WITH employer or union plans?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
Can have Original Medicare with a union/employer plan
Employer plan pays 1st for 30 months from 1st mo. eligible for Medicare. Providers who agree to accept Medicareallowed payment cannot bill you for unpaid balances over thatamount.
After 30 months, Medicare pays 1st and union or employer plans pay 2nd. As a secondary payer, union or employer plans may have out-of-pocket costs.
Some employers/unions may enroll their Medicare employees in a group MA plan or an individual MA plan.
Someone who gives up an employer or union plan may not get it back
Employers with ≤50 full-time employees may provide a Marketplace plan & dental plan through SHOP
If someone has Medicare & a SHOP plan, payment follows Medicare secondary payer rules like Original Medicare
How does a patient’s WORK affect plan?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
People on dialysis can work & keep Medicare (see section on coordination of benefits)
Employer plans pay first for transplant recipients on Medicare due to disability after ESRD benefit ends at 36 mo. post-transplant if plan is based on own or family’s current work & employer has ≥100 employees
Employer plans pay first for transplant recipients on Medicare due to age after ESRD benefit ends at 36 mo. post-transplant if plan is based on own or family’s current work & employer has ≥20 employees
Same as Original Medicare
If eligible for a SHOP plan the premium can’t be more than 9.86% of the employee’s income to be considered “affordable.” If not affordable, person can choose to enroll in a QHP instead to get premium tax credits and subsidies, if eligible.
How LONG will the plan last?
Original Medicare
Medicare Advantage (MA)
ACA Qualified Health Plan (QHP)
≥65: as long as premiums are paid
On dialysis: as long as dialysis continues
As long as SSDI checks continue
Kidney function improves (dialysis not needed): 12 mo
Transplant: 36 mo.
“Continuation of Medicare”: 93 mo after trial work period ends if disabled
“Medicare for People with Disabilities Who Work”: after 93 mo pay Part A, B, & D premiums to keep Medicare
“Section 301” can help transplant patient who is in a VR or other program whose goal is to end benefits when SSA says s/he has medically improved; s/he keeps SSI & Medicaid or SSDI & Medicare until program ends, s/he leaves the program, or SSA decides the program is unlikely to prevent return to disability rolls.
NOTE: If SSDI ends before 36 months after transplant, Part B premium won’t be paid with SSDI, so prepare to pay premium another way to keep Medicare
Same as Original Medicare
As long as the premium is paid or until the plan is cancelled
I am wanting to schedule a kidney transplant. I already have a donor, but only have health sharing benefits. I have been approved to be reimbursed but need the money upfront for my transplant at Northwestern Hospital in Chicago, IL. Do you have any plans that would help me get my transplant.
Hi Robert, I don't know much about "health sharing benefits" plans, but am wondering if you might be better served by having Medicare if you can get it and a Medigap plan. The transplant work-up, surgery, hospital stay, doctors, follow-up doctor visits and drugs for the life of the transplant are very costly. I'm not aware of any charity that will give someone the money upfront and wait to get reimbursed later. Attempting to raise the money to pay upfront and wait for reimbursement (which may not be full reimbursement) would be very difficult and could take a long time. You can read about financing a transplant at https://transplantliving.org/financing-a-transplant/. Two organizations that administer funds that are raised by patients/friends/families, etc. that my friends who work in transplant recommend are Help Hope Live and National Foundation for Transplants. Your living donor may get help through your transplant program if it's affiliated with the National Living Donor Assistance Center.
Most people who have kidney failure who are working or who have worked long enough can get Medicare. You may qualify for a Medigap plan which helps to pay Medicare's out-of-pocket costs. Here's info on Medigap plans in IL. Someone in your state insurance department who knows about health insurance should be able to tell you if you're eligible for it. You have 6 months to enroll from when you get Medicare Part B if you qualify. http://insurance.illinois.gov/HealthInsurance/MedicareSupplement.pdf
Here's a Medigap booklet for the Chicago area that states that if someone under 65 with Medicare due to a disability failed to enroll in a Medigap plan during the 6 month open enrollment, he/she has another chance from October 15-December 7 yearly. http://insurance.illinois.gov/HealthInsurance/ConsumerHealth.html
Did you talk with the social worker and/or financial counselor at Northwestern? What did they tell you?
Comments
Robert Murillo
Oct 14, 2019 6:44 PM
Beth Witten
Oct 20, 2019 10:09 PM
Most people who have kidney failure who are working or who have worked long enough can get Medicare. You may qualify for a Medigap plan which helps to pay Medicare's out-of-pocket costs. Here's info on Medigap plans in IL. Someone in your state insurance department who knows about health insurance should be able to tell you if you're eligible for it. You have 6 months to enroll from when you get Medicare Part B if you qualify. http://insurance.illinois.gov/HealthInsurance/MedicareSupplement.pdf
Here's a Medigap booklet for the Chicago area that states that if someone under 65 with Medicare due to a disability failed to enroll in a Medigap plan during the 6 month open enrollment, he/she has another chance from October 15-December 7 yearly. http://insurance.illinois.gov/HealthInsurance/ConsumerHealth.html
Did you talk with the social worker and/or financial counselor at Northwestern? What did they tell you?
Mary Beth Callahan
Mar 21, 2019 1:18 PM